Living with chILD

Different forms of chILD require different treatments and support. The goal of treatment for chILD is to relieve symptoms, provide support to maximize growth and development, and to prevent exposure to preventable illnesses that could make the chILD syndrome worse.

The first step in living with chILD is to learn as much as you can by talking to your physicians and reaching out to other parents for support and tips for daily living. The adjustment is never easy, but there are ways to make it more smoothly. It is also important to take care of yourself as a care giver.  A diagnosis of chILD not only affects the patient. It affects the parents, siblings and other family members in countless ways.

Child Foundation

Oxygen Supplementation